In my very last posting (about the Ofsted SEN review) , I mentioned Julie Evett, a campaigning Mum who last year took on the media and this year is the subject of a documentary for the BBC.
"Julie Evett had to give up being a normal decent taxpaying citizen in January to care for Rose, now Im having to pay privately to try and get a diagnosis. She has been labelled as a FRAGILE child with life limiting and life threatening Epilepsy but the NHS let these children wait far too long, does she have to pass away first? madness utter madness."